2009 - A year ago we were in sunny Florida - but as you can see we were freezing! It was in the low forties and the wind was making it colder! The girls were invited and participated in a panel discussion about living with MPS I. The conference and meetings took place at the Coronado Springs Resort at Disney World, just before Christmas. Joel joined us and we spent time together as a family enjoying Florida, meeting new friends at the conference, and seeing Epcot and the Magic Kingdom.
